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My Story

You might be wondering how I got here. I went from being a competitive athlete, to being bound to crutches and wheelchairs traveling all over the country in search of a diagnosis. It all began at a regular soccer practice in December of 2020, when I slightly overstepped for a pass and suffered a minor hamstring strain. I rehabbed and when I was about a week out, I re-injured what I thought was my hamstring again. However, this time was different. My knee began to buckle outwards and if I tried to straighten my leg, it would start spasming uncontrollably. Obviously this wasn't normal for a typical "hamstring strain", so collectively the decision was made to get an MRI scan. Before this could even be scheduled, things took a serious turn. I woke up one morning to my leg kicking on its own, as if someone was checking my patellar reflex every half second.  When I would walk, my leg tremored so aggressively it forced me to use crutches. I was quickly admitted to a local hospital for a week, but was left without answers - they had no idea what was wrong with my leg. I then spent the next nine months desperately searching for a diagnosis. I ended up seeing about 30 doctors and specialists, including visits to UCLA, Phoenix Children's Hospital, Stanford, Mayo Clinic, along with several local doctors. We decided to give it one more shot and travel up to Park City, UT to see a sports neurologist there. I'm forever grateful that I did, because within one day of meeting with the doctor and his team, they diagnosed me with CRPS or Complex Regional Pain Syndrome. They started me on one of the treatments for it that same evening, and the difference was truly night and day. Although I'm still rehabbing after a few setbacks and surgeries, I was able to put away the crutches and get around on my own two legs again. I have recently started running after not knowing if I could ever walk again. I am working on getting back into soccer in hopes of being able to get on the field this spring. I couldn't imagine how my life would've turned out if I hadn't gone to that one doctor in Utah. And I wish it wouldn't have taken so long to find an answer. Now that I'm finally getting back to life, I'm dedicating myself to this fight. I want nothing more than to help others with CRPS, whether it's funding for a treatment or just raising awareness. That awareness can be for both  doctors and the general public. There are still many unknowns with this disorder, for example: is CRPS genetic or autoimmune? Part of the funds raised with this non-profit will go to research the origins and overall make up of the disorder, as well as clinical trials geared towards advancements in treatment.

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Main Goals

Sponsor Patients in Need of Treatment

Spread Awareness

Raise Funds for Research/
Clinical Trials

You wouldn't believe the number of times CRPS is missed or just completely misdiagnosed. In fact, about 59% of cases are a result of a misdiagnosis. Spreading awareness of this disorder especially for athletes is so important, as the disorder and its symptoms are often overlooked.

There are still so many unknowns about CRPS. And along with that, there is no cure for the disorder. Our goal is to raise funds to donate to clinical trials that are currently taking place for CRPS, along with funding research being done on the disorder. It is beyond important for us to find the origin of this neurological condition so we can learn how to properly treat it.

With treatment not being a 'one size fits all' and so many doctors not having a good understanding of CRPS, it can be difficult to get the appropriate treatment. Therefore, in order to get adequate treatment you often have to travel to see specialists that are more familiar with the condition. This can be challenging not only financially, but mentally and emotionally draining as well. 

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